I’ve written about this before. Once you enter the ‘life or death’ portion of the program EVERYTHING changes. Medicine becomes much more proactive and caring, even (especially) outside normal appointments.
This morning was a good example. I left a voicemail message for Nicole, my oncologist’s physician’s assistant.
If you’re sick you want Nicole on your team. I’ve told her as much more than once. I told her again today.
It started after 4:00 AM when my body woke me from a sound sleep. It was as if my bones had grown too large to fit.
It wasn’t painful. I didn’t start screaming. It was extremely uncomfortable. There was no position I could find which would allow my bones to calm down. Until things subsided there would be no sleep.
None for my partner in-bed either! She is a sainted woman.
I had a doctor’s appointment this morning with my cardiologist (all good, even cutting back on my statin), so as Helaine drove I called Nicole to see if she had any insight.
My suspicion was this was Neulasta related. It is known for its bone affecting side effects, but usually on Day +2, not Day +4.
Nicole’s return call came while my cardiologists was examining me. Their offices are on the same floor. I stopped by on my way out.
“Nasty stuff” is my takeaway from our conversation. My post-chemo Neulasta shot is nasty.
Having a moment to see Nicole and discuss this speed bump made all the difference in-the-world. So often in cancer treatment you’re in unexplored territory. Who knows why you feel a certain way at any given moment?
I’m not TV-boy here in SoCal. This is not special treatment for a celeb. It’s just the way it is.
Thank God. If you’re ever in this position you’ll see how valuable this level of medical care truly is.